I have been asked so many times “why are you doing this to yourself?” I have never seen this as a punishment, certainty not. I’m doing it because everyone of the items on my list is a challenge, and I enjoy a challenge. However, I’m also doing it to show my daughter, who has the same condition, that anything is possible.

Ellie will be 11 in July 2013. She is already having problems with balance and in 2010 had surgery to both legs which improved things slightly but she may need further ops in the future. I want to show her that life is to be challenged, that given an opportunity to experience something new she should grab it.

The other reason for doing the 50 list is to raise money for the CMT organisation.

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