I have set up a JustGiving page to make it easier for people to donate much needed funds towards the CMT Organisation.
Not a lot of people have heard of this condition, and surprisingly some of those people include doctors.
Up until Oct 2011 I had only met 2 other people with the condtion. My daughter didn’t know anybody else with the condtion either. But through the CMT Organisation and a weekend away at a CMT Family Conference Both myself and my daughter got to meet and talk to other people with the condition. It was a great time to compare the issues we face and share ideas. My daughter met a number of children her age that had similar challenges.
The money raised will help the organisation bring more people together and to help the organisation to raise awareness.
To make a donation please visit http://www.justgiving.com/the50list